First--no, no China news! 92 days and counting...but hey--the days not over yet!
This post is simply to vent a little. For those who don't know, my little Ella is one of approximately 12 million people who suffer from food allergies. While I am fully aware that she could be afflicted with far worse things, the truth of the matter is, food allergies are responsible for about 30,000 Emergency Room visits and claim the lives of about 200 people each year. In relation to other conditions, that number may be small---unless one of those 200 was someone you loved. For no explainable reason, food allergies have doubled in the past 10 years. Ella is one of about 1.8 million people with allergies to Peanuts and Treenuts. Unfortunately, her allergy is life threatening. Her very first reaction was an anaphylactic reaction in which her throat was closing. At 2 years old she had put a cashew in her mouth, spit it out, and within minutes had no voice--her larynx was swelling. Luckily, while we all had no idea what was occurring, someone was watching over her and her condition did not progress to the point that she couldn't breath. The thought of what could have happened that day is unbearable. Although the hives and fiery red rash she was covered in for several days following that incident were a reminded of what could have happened, we were blessed with just "a warning". Now, armed with an Epipen, my search for any and all information food allergy related began. Sadly, I would find little comfort in what I read. Somehow food was now a potential enemy, but not only food. There would be many other hidden hazards---in soaps, in lotions, in hair products, in makeup and in cleaning products. The thought that my little girl could accidentally ingest something and her throat could close in 1-2 minutes became my most haunting thought. I struggled, and still struggle, to find a balance between stressing the importance of being careful with what she eats, and scaring the hell out of her.
So here we are today. I have learned everything I possibly can in order to understand her allergies and protect her. This knowledge however is not enough to comfort my constant worries. There is a part of me that worries everyday about her. Aside from the obvious, I worry most about her feeling different. I hate that she has to have "her own" food and "her own" cupcake at parties. I hate that she is restricted in the restaurants she can go to and the foods she can eat there. I hate that her allergies have the potential to disclude her from certain activities at school where food is involved--which was an issue just today and what initiated this post. All the while I hide from her how my heart breaks for her every time she can't be just like her three year old friends and I make a constant effort to make her feel like its "no big deal". I try to find the right way to teach her how to protect herself without making her allergy a handicap. We got through Halloween, which is by far the most challenging day of the year, but now there are new worries as we approach the Holiday season. Can she eat the food at the parties we go to? What safe dessert will I pack for her? Will there be nuts out at the party? Will someone enjoy their delicious nut filled cake or brownie and then leave residue in a place where she'll come in contact with it? Will a kind well intentioned person offer her food she can't have while I'm not looking? While other people just don't understand the severity of the situation, I wonder if I'm looked at as the "neurotic mother". That however is
not something I worry about. I have to be the neurotic mother. I have to be vigilant. I have to protect her.
So today my thoughts are with all the other moms who struggle everyday to keep their children safe from something others look at as just a basic necessity--food. To those who know all too well that most people "just don't understand". Those who are fellow "master label readers" of everything, not just food. Those of you who, once again, told their child that they couldn't eat something they wanted because it could make them sick. Those of you who spend the school day praying your child will be safe in someone else's care. Those whose daily accessories are a bottle of an antihistamine and an Epipen. Those of you who pray that you'll know when to use that Epipen and you'll administer it before it's too late. Those of you who have, or will have to look into your child's eyes when they first come to the realization that the food they're allergic to will not only make them sick---it can kill them. Those of you who pray daily that the reason for this rise in food allergies will be discovered and one day there will be a way to prevent or cure them. Those who know that no one ever intentionally eats a food that can trigger a fatal reaction----it's
ALWAYS an accident, and therefore everyday try to prevent that accident from occurring--try to predict if there is any way possible that the food your child is about to eat may have be cross-contaminated.
While I wish that a life threatening food allergy was not a part of Ella's life, I am also so very grateful. Grateful that her allergy is just to peanuts and treenuts, unlike those with multiple food allergies which make the normal task of eating a nearly impossible task. I am grateful that she is otherwise healthy and that although she has something that is a bit of a disability, she is not handicapped by it and does not have a condition that causes her constant suffering. I know that there are worse things, and I thank God that it is not one of those things we are dealing with.
Christmas day-Ella in her Christmas dress, and J, as always, in his newest football jersey from my mom.
This was Brody all tired out after the Christmas festivities!
During dessert on Christmas Eve Mom always breaks out the "poppers" and we all wear the paper crowns found inside. Don't we look cool????
You'll see from this picture and the next that Mom and Gram had the very same reaction when opening their gifts. Mom got the audio books from the Twilight series. Gram got mason jars---explanation---when I was a kid Gram used to make her own pickles. They were the only pickles I ever liked. I've been asking her for years to make pickles and she always come up with an excuse why she can't. Her latest excuse was that she didn't have jars----so now she does---NO MORE EXCUSES GRAM!!!!!!
Yes, very bad lighting, but it would have been a nice picture
Yes, another explanation---apparently there is a song about "Chicken noodle soup with a soda on the side"---I have no idea, but it's always been this inside joke between Jason and Ella. So when Ella asked Jason what he wanted her to get him for Christmas he said "chicken noodle soup with a soda on the side"----so that's what she gave him!
Ella loved her Cinderella perfume from Brianna!
From Jason to Ella-Hulk hands-again another little inside joke of theirs. She's now been beating him up for days!
.jpg)
